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NPO ASrid
Advocacy Service for Rare and Intractable Diseases’ multi-stakeholders in Japan
LocationJapan
Issue AreaHealth
Tax benefit eligibilityUS
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Our Mission
ASrid is an intermediary organization that focuses on all rare and intractable diseases. We work with patients and other multi-stakeholders to generate evidence for policy and other recommendations, support drug development, and increase public awareness.The Need
For patients with rare diseases and their families, we believe the following needs need to be identified: quality of life, policy advocacy, multi-stakeholder global collaboration, new diagnostic and treatment methods, employment support, and mental health care.The Solution
Surveys and research for PRO utilization (qualitative and quantitative), Registry Management, Patient/patient association collaboration, Patient needs survey (R&D, social welfare), Workshop/portal site management, Social awareness campaign development, Global collaboration, Other.Our Impact
ASrid has received several national and international academic awards for rare disease patient research. In addition, as an intermediary organization, ASrid actively collaborates with multi-stakeholders and, as the RDD Japan office, has successfully connected communities throughout Japan.
About this Organization
About Give2Asia
Give2Asia is a trusted partner for international philanthropy and the leader in donor-advised giving to the Asia-Pacific. Our mission is to strengthen communities in Asia by making cross-border giving easier and more effective. Since 2001, Give2Asia has facilitated more than US$465 million of charitable grants across 20+ countries.
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